People who equate truth with fact are missing the point.

Where To Go from Here

Oh, hello, world. I guess you’re all still here. I’ve been hiding in my house, decluttering and nesting and repairing various appliances and vehicles.

What the hell is up with that, anyway? It’s like everything mechanical is conspiring against us. I think the refrigerator is the ring leader: Hey, hold it together! Don’t break; just hang on through the winter and then, come spring? BAM! We’ll all go down together! Bwahahaha!!!

It would be swell if the mechanical stuff that is conspiring to suck up all our resources at once would let our bank account in on the game. And of course when the expenses get big, they all get big at once, right? So on top of the cost of multiple repairs, there was a snafu with the health insurance and we all know that health insurance snafus are the most expensive snafus of all. No matter the nature of the mistake, and no matter who was at fault, the customer is responsible for the financial cost of that mistake. It’s like a law of the universe or something.

In not-unrelated news, ramen noodles are not improved with the addition of salsa. Just so you know.

So! I did not, in fact, sit down at the computer to bitch about our money-hemorrhaging situation. Nope, there are happier things to discuss, such as some of you have never heard the sound of my voice but today, that will change. Hooray! I can tell you’re all a-twitch with excitement and joy.

I did an interview with the brilliant and beautiful Meredith of (over)thinking mom. You can listen to the podcast and hear me talk about raising Carter, our struggle to access services, living without a firm bottom-line diagnosis, and some of the effects all of this has had on our other kids.

I listened to the podcast for the first time last night and I have to say, hearing myself speak compared to reading what I have written is interesting. There’s little time for self-editing and I think the podcast reveals more of my general ambivalence than my writing does. I’m full of contradictory thoughts and feelings and the immediacy of speaking highlights that.

When you’re done with that, go read Justine Larson’s guest blog at Scientific American, Blaming Parents: What I’ve learned and unlearned as a child psychiatrist. Her piece is a breath of fresh air.

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11 comments to Where To Go from Here

  • Cool! I’m running right over to hear your podcast!

  • TheNextMartha

    Can’t wait to hear it. Also? Sometimes houses suck.

  • I did a podcast interview with her too. She is great but being unable to edit was not. So hard!

    That article was really interesting. I often with throw down my husband’s and my MDs so we are more respected by other medical professionals. I don’t do it often but sometimes there is no other way to get someone to listen.

  • ooo! can’t wait to go hear your voice…and HEAR your voice.

    🙂

  • I realized that we have a couple of HUGE copays due after insurance was applied and started to panic today. Then I decided to set them aside for now and call to try to set up a way to deal with it on Monday when I’m (hopefully) less frazzled!

  • I came by yesterday, but was in such a hurry to go *hear* you I forgot to comment – Doh! Love you!

  • The (over)thinking mom interview is great. I completely agree with the “bending the truth” notion of supplying the uninformed and judgmental with more readily palatable “explanations” of the cause of one’s child’s special needs. A little white lie which makes life easier.
    Listening to your voice on the blog is startling– your writing has great flair and is dramatic; in sharp contrast, your voice is so calm and soothing in its matter-of-factness.
    As always, thank you for your courage and candor.
    w/love,
    Stephanie

  • ant Judy

    PBS News Hour next week does a 5-part series on autism. Not probably a bull”s eye for Carter but in the neighborhood for effect on family, time, etc.

    Bad refrigerator. Naughty. Naughty.

  • I just wanted to say thank you for the brilliant interview. I have an autistic son, and am studying special education. I am collecting resources to educate people who ask what they can do to help others who love and live with a special needs child. I will definitely be be directing people towards your interview and blog. Thanks again for the candour and insight.

  • Ummm…salsa on Ramen noodles? What? Why? Aren’t they just gross enough 😉
    I can’t wait to hear your voice!!

  • Heading over to hear your pod cast and then go read the link!

    Thanks!

    that is all

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