In the Beginning

Here’s the thing: in the beginning, everyone is lost and alone. No matter how a person goes from being parent to parent of a child with disabilities, in the beginning the world turns itself ass-end-up. Whenever the news comes or the realization dawns—during pregnancy, immediately or shortly after birth or adoption, or later—there is a […]


Brian and I took Carter to the ER last night. After four nebulizer treatments in three hours, he still wasn’t breathing well so we piled into the car at midnight and headed out in search of a few doses of prednisone. Why can’t they put reasonably comfortable chairs in ER exam rooms? Do they think we’re […]

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